Monday, December 7, 2009
Joy Unspeakable
Monday, November 9, 2009
IU Evaluation
We scheduled another team visit at the Lancaster Clinic early in January to discuss and arrange for surgery. It will most likely be a total lip revision and z-plasty (lengthening of the palate). These are not dangerous surgeries but will require a couple days in the hospital and 6 weeks of a soft diet. Good thing she likes congee and noodles! The lip repair takes about 6 months to heal. the lip revision worries me the most. She is so active. I can't imagine her being careful not to fall or bump into something and she will probably have to wear arm restraints for awhile so she does not touch her face. Oh, it all makes me sad but from what we hear from her major palate surgery in China she is very brave. She will be a trooper about it all and Mom and Dad will be a mess for sure!
Tuesday, November 3, 2009
Cleft Team Appointment
The speech therapist had so many positive things to say about Grace. We talked to the therapist most of the time but she did work with Grace for just a few minutes. Grace showed improvement in that short time! We will set up speech therapy once a week in the next month or so.
The surgeon confirmed what we had expected... her lip and palate are in need of much repair. He was straight forward about it but very optimistic and certainly not shocked about any aspect of her condition. He has been doing these repairs for 25 years in the US and on medical mission teams oversees. There is nothing he has not seen and he has done hundreds upon hundreds of these surgeries. The procedures that she will need will be spread out over time. Step by step. The first step will be a Z-plasty which is a procedure to lengthen the palate as well as a complete lip revision. The muscles on her lip were not connected properly so they will take care of that and do some other cosmetic changes. Her nose will not need too much repair but will improve in appearance when her lip is corrected. We will schedule the Z-plasty and lip revision sometime in the Spring most likely. The z-plasty will greatly improve her speech so we want to do it soon but not too soon because we want to love on her a little more before we put her through a major, but not dangerous=), surgery. We have come so far in bonding with Grace we don't want to take a step back quite yet. 6 months home is about the recommended time before surgery if possible.
Grace did such a great job with it all. We were such the proud parents! She was high fiving everyone and showing off. She took to the surgeon right away which was so cute. You could tell that he just loves kids. She could tell too. It is funny, we talk about all of these corrections that will be made and we do really want the very best for her but we just love her little face. It is hard to think that she will look different than she does now. Her Daddy has been smitten with her since the first day her little picture came across our computer, split pants and all! lol! As she goes through times in her life and develops her own self-concept, I hope she fully realizes how strikingly beautiful her Daddy thought she was even before all of these cosmetic changes.
We are just overjoyed with the level of care available to sweet Grace right down the street from our house. It was one of the million pieces of the puzzle that allowed this miracle to happen in our lives.
We will have Grace evaluated at the IU next week so more to come.
Home a month+
Grace continues to do so well. She is happy, energetic, determined, and sooooo loved! I have returned to my two mornings of teaching PE at Cole's school and she has done well staying with my Mom. We practiced separating a few times before my first morning and she does well. The first time I left her to go run a quick errand she cried a little and then played happily. She didn't want me to put shoes on for the rest of the day though! After a few other practice times of separation she seems to be doing well with it. I think she is understanding that Mommy always comes back just like Daddy does.
Grace is very active and very busy. She loves to sing and dance and play outside. We hike in the woods just about every day and visit the little park at the church. She is learning to pedal a bike and doing pretty well with it. When it rains we all get very antsy! Cody and Grace need a lot of supervision so I don't get much done during the day. Call before you come over or you may witness what appears to have been a major disaster inside my house=) Grace loves taking baths, putting things in and out of her Dora backpack, and playing with Daddy. Her Dora backpack is falling apart. She fills it so full with heavy stuff and carries it everywhere. I don't understand how her shoulders take it!
One of the most challenging thing is Grace's speech. She understands us so well but she has trouble saying a lot of sounds so it is hard to understand her. This considered, it is truly remarkable how well we do communicate. She has a way of telling us how she feels and what she wants despite her speech delay. At times though her inability to communicate clearly can be frustrating to her and to us. She yells and grunts a lot when she wants something which can be tough to hear again and again but she is slowly learning to break this habit and ask for help, or chocolate, appropriately=)
Grace is doing very well at nap and bed times. These are the times she usually would cry and cry for her foster grandmother. She doesn't cry anymore and she responds well to looking at their pictures and talking about China and the adoption. We talk about the day Gracie met her Ma ma and her Ba Ba and how it was hard to say bye bye to her Nai nai and Ye ye. We ask her if she has to say bye bye to Ma Ma and Ba Ba and she says no no no no. We say that's right no more big changes, this Ma Ma never leave this Ba Ba (Daddy) forever. She has been told these things often in Chinese and English. I really do sense she understands.
Well, that is it for now. Thanks for checking in on us!!!
Tuesday, October 20, 2009
GREAT NEWS!!!
Tuesday, October 13, 2009
Home almost 3 weeks
Saturday, October 3, 2009
First Dr. Appointment
The Homecoming
Sleep would be tough for the next several days. We were trying to get over a 12 hour time difference. Rob continues to be amazing with Grace. She goes to sleep for him much better than she does for me. We had grandparents only visiting which helped Grace not feel anxious. She was not comfortable with commotion other than kid commotion=) She did not quite know how to interact with people she did not know. She wanted to play with them but would throw a toy at them so she would not have to get to close. Or she would just start kind of "acting out" throwing things or flopping herself on the ground when new people were around. She still struggled a great deal with nap time and bed time the first week home although it was improving quite a bit thanks to Rob's hard work. We have a Chinese friend who came over and talked to her again about what was going on. We gave Grace a photo album of all of us and her new home. She loves it. We put a picture of Grace and her foster mother and father in the album then a picture of Rob and I and Grace with her foster mother the day we adopted her and finally a picture of just Rob and I and Grace. This 3 photo story so to speak was an idea I got from a book I had read before we left. I think it is really helping Grace with her grief. She at times takes the adoption day picture out of the book and pretends to rip it up. She never does though but keeps putting it in and out. I am sure that day was so tough for her. She absolutely loves the picture of Rob and I with her in her new house. She kisses it and gets so excited about it. We are surely making a lot of progress in a short time. It is amazing the way kids adapt.
More on Guangzhou
Gracie Mei was getting more and more comfortable with us and her surroundings. I missed the kids so much and wanted so much to go home but I just could hardly handle the thought that Grace would have to go through yet another huge change. Up to this point I am sure she thought we would always live in a 5 star hotel with a huge breakfast buffet! lol! I worried about how it would all go with the kids at home. Grace was doing well with other kids at the White Swan but she really did not trust adults. She would shake her head no at people and if they would get too close she would act like she was going to hit them. We noticed that she acted this way pretty much only to white people. Oh, she had a lot to learn. When we would be in an unfamiliar situation with crowds around us etc. Grace would many times hit or scratch us. We could tell she didn't mean to be mean but was just very unsure of what was going on around her and of course unable to express her fear appropriately.
We flew to Beijing and then New Jersey on Thursday. It took us over 26 hours from door to door. Grace did amazingly well. We flew during the night and she slept for 8 hours and then again for an hour or so. Not bad for a 13 hour flight!
Friday, October 2, 2009
Guangzhou
Hefei - Capital of Grace's province
Beijing - More details
Sunday, September 13, 2009
Thursday, September 10, 2009
We made it!!!
Wednesday, September 9, 2009
Away We Go!
We are juiced about going and everything else has gone smoothly today. Can't wait to see and hold little Gracie for the first time!
Rob
Tuesday, September 8, 2009
we are ALL off to China!!!
Sunday, September 6, 2009
Wednesday, September 2, 2009
Travel plans and Rob's health
Friday, August 28, 2009
We leave the 9th!
Tuesday, August 25, 2009
TRAVEL APPROVAL IS HERE!
Friday, August 21, 2009
LWB supplies
Tuesday, August 18, 2009
Prayer Requests
TB testing
Waiting for Travel Approval
Friday, July 31, 2009
Another visit from Sandy!
July Update
LOA IS HERE!!!
Saturday, July 25, 2009
Visit from Sandy
Tuesday, July 14, 2009
Gratitude Journal
We are grateful for:
1. Answered prayer:
We have been praying about all of the reports saying how shy and timid Mei is. In the most recent report they say that she is becoming much more engaging. This is wonderful to hear.
2. Palate repair
It crossed my mind as we are becoming discouraged with this wait that we need to be so thankful that Love Without Boundaries and Dr. Ness' medical team closed Mei's palate in April (on Rob's birthday). If this had not occurred the wait to bring Mei home would be even more difficult. To know that she has jumped this medical hurdle that allows her speech to improve etc. is such a blessing.
Thursday, July 2, 2009
Word from Beijing
Wednesday, July 1, 2009
Still Waiting
Saturday, June 20, 2009
Family Age
Monday, June 8, 2009
False Alarm
Thursday, June 4, 2009
Gratitude Thursdays
We are grateful for:
1. Answered prayer:
We had prayed that Mei Mei would have interaction with other children. She certainly will when she comes home. Our prayers were answered as her last report stated that she plays with her friends and brother!
2. Strength:
We continue to be strengthened by God's Word. His strength is perfect when our strength is gone! Apart from Him we can do nothing but through Him we can do all things through Him who gives us strength! Man cannot live by bread alone! Pardon my paraphrasing. Here is a verse we are grateful for. Hope, joy, peace, trust. We need it all!
Romans 15:13May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.
Monday, May 25, 2009
NEW UPDATE!
Thursday, May 21, 2009
Gratitude Thursdays
We are grateful for:
1. Answered prayer:
As you can see on our prayer list we had been praying for pictures of Mei's foster family and we now have a picture of her foster Mom! We are still unsure if she has any foster siblings and we already have a picture of who we think is her foster Dad but this new picture we received in an update is such an answer to prayer! We will need to help Mei say goodbye and pictures will help in this process. Of course we are hoping for more and the chance to meet them in person in China. But for now, Yeah God!
2. Time with Cole, Julia, Cody!
Any new addition to the family can be challenging. We know, we have done it three times=) Although everyday we have to wait to bring home Mei Mei is difficult we are considering it a blessing to be able to spend focused time and soon summer fun with Cole, Julia, and Cody. (Cody is at the moment in the creek bare naked except for water shoes)
3. Time to prepare:
There is sooo much to do before our trip. We must rearrange and redecorate the bedrooms along with many other household projects. We are still learning a lot from adopted parents and other resources about cl/cp and what to expect when adopting a toddler. The list of "things you want to get done before the baby arrives" is very long!
4. Amazing resources:
I am trying to start a life book for Mei and it is amazing how much I already know about her past. It is such a wonderful thing to be able to collect these things for her. The way the Internet connects people is amazing! We have found pictures of the orphanage she lived in along with very detailed descriptions of the building. We found her name it various places showing that she needed to be sponsored for both her lip (2007) and palate surgeries and then that her sponsorship was paid in full. We found pictures of her recent palate surgery and the man we think is her foster Dad. We have received updates and have a pictures of her foster Mom which was an answer to one of our ongoing prayers. We found out that there are documentaries that have been made about the city she lives in. They give glimpses into everyday life there and when she is older she will be able to see what life in her city in China was like. I could go on. It is not going to be a life book it will be a life bin!
No LOA =(
Friday, May 15, 2009
Updates/Travel
Friday, May 1, 2009
Finally a picture!!!
Thursday, April 30, 2009
Swine Flu
Tuesday, April 21, 2009
Medical Stuff
I will start with the cleft lip. As you know she was born with bilateral cleft lip and it was "fixed" when she was 2-3 months old. We think that this was done as part of a government initiative and was probably done by a Chinese doctor. We have learned that many times they just stitch the lip up so that the baby can eat and also have the chance to be adopted. Many times they do not attach the muscles in the upper lip properly and the child cannot move their upper lip. This is a problem because the child then cannot pronounce certain sounds and cannot pucker or kiss and when they smile their upper lip does not smile with them. Looking at quite a number of pictures of Mei Mei I am guessing that this is the case for her. If so, she will undergo a lip revision here to attach the muscles. We also will do plastic surgery to reduce the scarring from her first surgery. We are sure they will do a great job but we are prepared for the reality that she will have noticeable scars. As Rob says, God accepts our scars we will accept hers! We are thankful for the opportunity to walk beside her and help her to put these things into proper prospective.
Moving on to the cleft palate. As you know we were amazingly blessed to hear that a wonderful doctor from the US recently performed cleft palate surgery. We have noticed that during the cleft exchange week when Mei Mei's surgery was done the repairs of the other children were quite severe. This served the purpose of the cleft exchange program allowing US doctors to teach the Chinese doctors how to surgically correct complex problems. Of course it would be nice if Mei Mei was just thrown into the mix because of her age. We don't want to speculate about things we are not sure of so we will see. A cleft palate repair is many times once and done. However other procedures may include adjusting the length of the palate, some type of flap surgery to improve speech and the way air moves or something of that nature, and repairing holes or gaps that my occur after the first major surgery. Many of these surgeries/procdures with the lip and palate etc. can be combined especially now that the major surgeries are taken care of!
Speech therapy will probably eventually become part of our weekly routine in the Fisher family. Every cleft case is so different so it is very hard to tell how much therapy she will need. We will first focus on her emotional adjustment and learning a new language all together! We are not sure exactly where therapy will take place. We have heard that kids are given therapy at home, in school, and even the preschool setting.
Hearing problems... Some kids with clefts have some hearing loss due to infections etc. Many need tubes. Mei Mei's medical records do not indicate any hearing loss or ear infections so we will wait and see while hoping for the best.
Dental work, dental work, dental work, dental work, dental work. Need I say more?
Again, I am telling myself and all of you... do not be overwhelmed. Being born with a cleft lip/cleft palate can sure be a pain in the rear but it is not at all life threatening. We are SO BLESSED in this country to have access to such amazing health care. In China, many of these children will live their entire lives defined by this correctable condition. What an amazing opportunity we have to give this little one a future defined by her strengths, hopes and dreams. Thank you Jesus!
Prayer Requests
1. Pray that we may be able to travel this summer while Rob is off.
2. Pray for healing as Mei Mei recovers from her recent palate surgery.
3. Pray for Mei Mei's foster parents that they may be able to prepare her as well as possible for the adoption.
4. Pray that our hearts will be knit together with hers.
5. Pray for Mei Mei's grieving process as she leaves all she knows in China and adjusts to life as a Fisher kid.
6. Pray for Rob and I as we wait. It is easy to cycle between faith and fear. This is truly an emotional roller coaster ride.
7. Pray for the swine flu outbreak.
seems to be contained!
8. Pray that we will get pictures of her foster parents and siblings, if any. This will help her in the grieving process.
received pictures of foster Mom and Dad!
received picture of foster Brother, Drew! 8/09
9. We now know Mei has a brother (not biological but most likely foster brother) so pray that he will be adopted and that we will find his adoptive parents.
10. We hear that Mei's foster parents hope that she can improve her speech. Pray that she can make progress now that her palate is closed.
reports continue to say Mei is improving in speech. She is using more words together and strangers can understand her!
That is all for now but be prepared to pray for this little one for the rest of your life on this earth=)
Tuesday, April 14, 2009
UNBELIEVABLE NEWS!!!
Wednesday, April 8, 2009
2 of Everything
Sunday, April 5, 2009
What about all of the other orphans?
Love Without Boundaries
Expecting #4!!!
Please don't feel obligated to keep up with our blog and our lengthy posts. This is a journey that we want to share with family and friends but I must confess that the blogs main purpose is therapy for us as we wait to bring our little girl home!